I know I have been a little lax on keeping up the blog but somedays there just seems to be to much going on for me. Let's see...A week ago Ily went in and had the feeding tube put in her stomach and that went very well. They began her 2nd round of chemo and that was going quite well. It seemed that things were going to be easier for her this time than they were the first time she went through this.
Ily was suppose to come home this week but she wasn't keeping anything down. Last night she her lips and tongue turned purple and she started to shake. Turns out she had a fever.They did some tests and she has a bacterial blood infection. How? No one knows. Today her fever has been high and they have just informed her Mom and Dad that she has a blockage in her intestines. This poor little girl is going through so much. Tomorrow if she is not any better they will be moving her into ICU.
Please say a few extra prayers for her and her parents. They are going through a hard time right now. We Thank you for all your good thoughts and prayers that have already been sent.
Ilyanna is Doing Wonderful
Ilyanna is doing wonderful. She has been home for the past few days visiting her family. Laughing and doing her High 5's that she so much loves to do. Her blood platelets are up where they should be and she seems to have so much more energy than she had.
Ily is going back into the hospital today to have her feeding tube put into her stomach as she has a tendancy to pull it out. How long she will be there I don't know. She has two more rounds of chemo to go so whether they will do the next one right after this surgery we will find out.
The family would like to say " Thank You" to everyone who has been praying for Ilyanna and sending things to the family. Their are not enough words to express how much they appreciate it. Please keep the prayers going as this is just the beginning and we have such a long way to go.
Few Days of Catching up To Do
Oh where did I leave off..Ilyanna had gone back into the hospital. They felt her fever was caused by a stomach bug.So they put her on a antibiotic and pedialyte for a few days. The one thing I can't understand is we can put a man on the moon but we can't make tubing that doesn't get holes in them, especially for an 8 month old. Ilyanna got a hole in her central line somehow so needless to say she had to have surgery again.They were a little leery as her blood count was so low and she was so weak but of course their really was no choice. They did it and she came through fine.
Our little cutie is now losing her hair..mostly on the sides as that is how she lays in the crib.She is still adorable. Ily once again pulled out her feeding tube..the hot ticket but when her blood count goes up they are considering putting one through her stomach so that she can't keep pulling it out.
She seems to be doing a little bit better. Her eyes are not as droopy as they were. Her Grandma from Brazil is arriving here on Tuesday to see her for the first time so that will be exciting.Actually it will be exciting for all of them.Christina has never met her Mother-in-law, Thiago has not seen his Mom in 5 years so it will be a wonderful day.They all deserve it.
Ily's Aunt Cindy made this beautiful tape that is on you tube for Ilyanna. Please watch:Cindy Jewell http://www.youtube.com/watch?v=cCmN4YlGf
Our little cutie is now losing her hair..mostly on the sides as that is how she lays in the crib.She is still adorable. Ily once again pulled out her feeding tube..the hot ticket but when her blood count goes up they are considering putting one through her stomach so that she can't keep pulling it out.
She seems to be doing a little bit better. Her eyes are not as droopy as they were. Her Grandma from Brazil is arriving here on Tuesday to see her for the first time so that will be exciting.Actually it will be exciting for all of them.Christina has never met her Mother-in-law, Thiago has not seen his Mom in 5 years so it will be a wonderful day.They all deserve it.
Ily's Aunt Cindy made this beautiful tape that is on you tube for Ilyanna. Please watch:
Cindy Jewell http://www.youtube.com/watch?v=cCmN4YlGfcQ
Ilyanna returned to Hospital Today
The whole family was so excited yesterday that Ily finally came home.I think that was probably just being a little selfish of us because that is where we wanted her to be.Everyone of us knew she was still very ill but she was closer to us.
Christina said it was harder than she thought it was going to be. Ilyanna was not peeing like she should and had a small temperature. She was not even SMILING !!
The Visiting nurse came and she called Children's Hospital and Ily was dehydrated and by the time they got there her temperature was even higher. They decided to admit her back in.
The last report I got from Ily's Grand mom at 8 pm was they had done blood tests,given her fluids,but she has yet gone pee at all. Her temperature has come down.
So please..put her in your prayers. If anything new comes about I will add it to the blog.
Christina said it was harder than she thought it was going to be. Ilyanna was not peeing like she should and had a small temperature. She was not even SMILING !!
The Visiting nurse came and she called Children's Hospital and Ily was dehydrated and by the time they got there her temperature was even higher. They decided to admit her back in.
The last report I got from Ily's Grand mom at 8 pm was they had done blood tests,given her fluids,but she has yet gone pee at all. Her temperature has come down.
So please..put her in your prayers. If anything new comes about I will add it to the blog.
Our Precious Girl Came Home Today
It has been a long week. Every day we thought would be the day when Ily would come home and something would come up and it just wouldn't happen for her. She had a fever one day but the Dr's. decided that was caused from her teething.
Ilyanna also has a rash on her legs that looks as if she is sunburned.They could not decided if it was caused from the chemo or the sheets. They had a Dermatologist come in and he prescribed some cream for her legs.
Since Ily has all those sores in her mouth and down her throat she has not been eating much so her Mom had talked with the Dr's and they decided it would be best to put in a feeding tube before she comes home. Well, as soon as the nurse got the feeding tube in and turned her back Ilyanna pulled it right out.She still has her marvelous disposition. They just put it back in and taped it down a bit better this time.She is still getting sick but she is keeping more in than is coming out.
All her medical supplies have arrived..we will all be wearing face masks to visit and scrubbing our hands in antiseptic gel but its well worth it for the smiles that Ilyanna gives us all.
WELCOME HOME ILYANNA
Ilyanna also has a rash on her legs that looks as if she is sunburned.They could not decided if it was caused from the chemo or the sheets. They had a Dermatologist come in and he prescribed some cream for her legs.
Since Ily has all those sores in her mouth and down her throat she has not been eating much so her Mom had talked with the Dr's and they decided it would be best to put in a feeding tube before she comes home. Well, as soon as the nurse got the feeding tube in and turned her back Ilyanna pulled it right out.She still has her marvelous disposition. They just put it back in and taped it down a bit better this time.She is still getting sick but she is keeping more in than is coming out.
All her medical supplies have arrived..we will all be wearing face masks to visit and scrubbing our hands in antiseptic gel but its well worth it for the smiles that Ilyanna gives us all.
WELCOME HOME ILYANNA
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