We sat down with Ilyanna's Oncologist's this evening and had a long talk about what decision they had come to and what plans they had decided on to treat her. She had decided that they were pretty sure Ilyanna had Medullablastoma but are running a few more tests just to make sure. The ATRT has a certain chromosone it it which is missing. So to be on the positive side they have sent the biopsy out to John Hopkin's Institute.
This is good news as with having Medullablastoma this gives Ilyanna a survival rate of 35-40% which ATRT is only a 10% chance. The Doctor explained in full detail the treatments and just what it will entail for Ilyanna's chemotherapy.The Doctor gave us a couple of options about her treatment and medicine for which we are going to have to think long and hard about...because after all we want to do what is best for our daughter.
For the most part she will undergo 3 cycles of chemotherapy..once every 4 weeks.Then after each cycle they will do an MRI to see if the tumor has shrunk or if it is gone. If it is not gone they will do another cycle of chemotherapy. If it is gone and everything is fine then they will go ahead and do 3 doses of stem cell transplant.
Ilyanna's Story
Christina and Thiago met in 2005 and not exactly a " Wow that's the guy for me scenerio" but after about 6 months of being friends it soon became that. So in August of 2007 they got married. It was like watching 2 people who never took their eyes of each other and then Christina became pregnant. She watched what she ate, Thiago doted on her, and heaven forbid, she gained too much weight on that 100 lb frame of hers.
On August 2, 2008 Christina gave birth to Ilyanna. She weighed in at 10 lbs 1.5 ounces and was 21 inches long. What a beautiful baby she was. She was a big one. The whole family was just hysterical because Christina was so small.
Ilyanna was a great baby. Every parent would wish for one like her. Cried very little..slept through the night after two months of being home and was always happy. Once she started to hear her own voice the louder she became. Always smiling.
The one thing you did notice was the size of Ilyanna's head it was large. Well, her Dad is a big guy with a large head so we just assumed she would grow into it. As she got larger she did. When she went for her regular check-ups her pediatrician was concerned about the size so he sent Ilyanna into Children's Hospital for a cat scan to check for no swelling on the brain. This is where everything began....
On August 2, 2008 Christina gave birth to Ilyanna. She weighed in at 10 lbs 1.5 ounces and was 21 inches long. What a beautiful baby she was. She was a big one. The whole family was just hysterical because Christina was so small.
Ilyanna was a great baby. Every parent would wish for one like her. Cried very little..slept through the night after two months of being home and was always happy. Once she started to hear her own voice the louder she became. Always smiling.
The one thing you did notice was the size of Ilyanna's head it was large. Well, her Dad is a big guy with a large head so we just assumed she would grow into it. As she got larger she did. When she went for her regular check-ups her pediatrician was concerned about the size so he sent Ilyanna into Children's Hospital for a cat scan to check for no swelling on the brain. This is where everything began....
We are continuing our prayers for you all here in the UK. Take care.
ReplyDeleteGod bless.
Much Love Sybil xx
Thank you so much for your prayers. We appreciate it so very much!
ReplyDeleteHugs,
Ilyanna's family